21. 2021 UPDATE on Novah

Novah will be three in June and I haven’t updated this site to share her progress. What a whirlwind it is being a parent.

At a glance, for those looking to learn more and find out more, Novah was diagnosed clinically shortly after birth with Cartilage Hair Hypoplasia. A diagnosis I had already predicted, based on her sparse blonde hair, bowed femur bones, small chest and the unfortunate immune deficiency detected soon after birth.

We came back to Hong Kong from New Zealand where a geneticist confirmed the diagnosis of CHH.

The best way to share an update of what has happened since then is to share this article I wrote for a local parenting website here in Hong Kong:

Raising a Child with an Immune Deficiency during COVID-19

xxxx Cruz